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iHelp for Autism 

For autistic children, the new iPad is an effective, portable device for teaching communication and social skills. It’s also way cool.

Wednesday, Aug 11 2010

Page 2 of 6

The Rosas first became aware that Leo might be different when he was 18 months old and a family friend who was a pediatrician suggested having the boy evaluated. Because Leo had always been "a sweet, bubbly, affectionate mama's boy," Shannon and Craig were mystified. But they took their son to a psychologist, who agreed that Leo did have some of the symptoms, including a lack of interest in people and a limited vocabulary for his age.

The Rosas began to worry. At that time, they didn't know anyone with autistic children. "Nobody tells you it isn't the worst thing that could ever happen," Shannon says. They began reading up on autism, and what they found was scary.

Perhaps their son had been poisoned by vaccines. Or mercury. Or some other environmental toxin. They read books that said Leo could be cured — if they were willing to take immediate action with expensive therapies.

Applied behavioral analysis (ABA) therapy, which involves predicting and controlling behavior, was one option. A gluten-free and casein-free diet, which restricts most carbohydrates and dairy products, was another. There was also chelation, which could supposedly extract mercury from the body. Back then, there was little literature debunking autism myths, and Leo's parents wanted to try everything. Rosa was so set on curing her son that she named her new blog The Adventures of Leelo, the Soon-to-Be-Not-Autistic Boy.

Although the doctor initially said Leo was not "a responder" to the gluten- and casein-free diet, he recommended trying it anyway. For more than a year, the Rosas denied their bread-loving son gluten and dairy. They also enrolled him in ABA therapy.

Leo's progress out of toddlerhood was slow at best, Rosa remembers. He was still in diapers, his attention span was brief, and he didn't sleep through the night. At the same time, he was becoming violent. On family outings, Leo would leave his car seat and pummel his younger sister, India, whom he seemed to resent for taking his place as the baby. On one trip, he threw a tantrum so extreme that strangers in an airport stopped to help him. The family stopped traveling.

Although the Rosas were initially hesitant to put their son on medication, Leo's intensifying brutality left them little choice. On Abilify — an antipsychotic commonly used to treat schizophrenia — he gained 15 pounds. His behavior worsened, and he seemed tormented and uncomfortable in his own skin. Rosa couldn't stand to see her son so miserable.

She began to realize she might not be able to cure her son, and entered what she refers to as "my dark period," which she likens to having post-traumatic stress disorder. She cried often, stopped engaging with people, and even stopped writing. She would sometimes be driving and realize she had forgotten the rules of the road. "I lost hope," she says.

When the doctor recommended Leo try an antiseizure drug called Risperdal, Rosa had low expectations. But almost instantly, Leo seemed calmer and more comfortable. He began sleeping through the night.

The Rosas moved to a larger home in Redwood City, and Leo switched to a special school. Victor Cabrera, a therapist of whom Leo is fond, started coming to the house four times a week for respite hours. All of this made the family's life easier, and, in Shannon's mind, prepared Leo for what she considers his biggest breakthrough, his near-miracle: the iPad.

After finishing his own bread at the Ferry Building and everybody else's at the table, Leo requested his prize possession.

His mother handed it over, and he brought his head very close to it, as if to snuggle. Then he began scrolling through the apps, gazing intently at the screen while deciding what he wanted to pull up.

"Want to watch a video?" Rosa asked. Although Leo didn't answer, he had clearly understood her, because he scrolled easily to a new cluster of icons, one of which represented his favorite Teletubbies video. He selected it, then watched in awe for several minutes as the vibrant, bizarre creatures rolled around.

After Leo exited the video and continued browsing, his mother suggested he make a rainbow. Leo can't use a pen or pencil very well, because, like many autistic children, he has problems grasping small items. Before the iPad, his most advanced drawing was a smiley face with legs.

But that day, Leo located and clicked on the icon for the Draw Free app and selected a blank canvas. He touched his index finger to the screen, swung it in a half circle, and repeated the motion several times, thickening the arc. Finally, he scribbled small circles on either side to represent clouds. Then he drew an umbrella. Then he drew a happy face.

"This is only after a month," Leo's father said. Craig Rosa works as a producer for KQED's multimedia science program, Quest. He believes his son's interest in the iPad has lengthened his attention span. "It gives you hope, and you begin to expect more instead of less."

But there's a reason the Rosas aren't quite calling this a miracle. There have been times when Leo loved a new toy for a few days or weeks, then never looked at it again. It's hard to say what he's really capable of learning. They don't want to overhype the effects of the iPad, especially before finding out whether science will back them up.

Rosa has been running a little study of her own on Leo. Using an app called Stories2Learn, she is trying to teach him to eat like a little gentleman.

In winning that raffle contest, Shannon Rosa inadvertently stumbled on a cutting-edge treatment that scientists, therapists, application developers, and parents around the world are only beginning to use.

In Pennsylvania, developer Seema Patel is working at the Autism Center of Pittsburgh on an iPad app that will challenge children with autism to identify the emotions of a robot named Popchilla. In Toronto, a profoundly autistic and nonverbal girl is using iConverse on the iPod Touch to tell her mother where she wants to go shopping.

About The Author

Ashley Harrell


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